Cancer Research and Care: The Power of Patient Advocacy and Unexpected Connections
Did you know that patient advocacy isn’t just about support—it’s reshaping the very way we approach research and treatment? And here’s where it gets even more fascinating: breakthroughs in HIV/AIDS research are quietly revolutionizing how we tackle other diseases, too. But here’s where it gets controversial: as we celebrate advancements, are we doing enough to raise awareness for lesser-known cancers like invasive lobular breast cancer? Let’s dive in.
SEATTLE — November 4, 2025 — The Fred Hutch Cancer Center is buzzing with updates that highlight the intersection of patient stories, cutting-edge research, and community impact. Here’s a closer look at what’s making waves:
November Awareness Spotlight: Lung and Pancreatic Cancers
November isn’t just about falling leaves—it’s also a time to shine a light on lung and pancreatic cancers. If you’re crafting stories around these diseases, reach out to media@fredhutch.org to connect with experts who can provide invaluable insights. And while you’re at it, don’t miss the eye-opening YouTube interview with Shannon M. Colohan, MD, a plastic reconstructive surgeon, discussing breast reconstruction for cancer survivors. It’s a conversation that blends hope with healing.
Patient Advocacy: The Unsung Hero of Healthcare
In honor of Health Literacy Month, Fred Hutch is amplifying the importance of patient empowerment. Gentry King, MD, Laura Carr (Heath Literacy Program Manager), and Andrea Suzuki (Patient Navigator) are leading the charge, offering resources and advice to help patients advocate for themselves in clinical settings. But here’s the part most people miss: when patients take an active role in their care, it doesn’t just improve outcomes—it transforms the healthcare system itself. How can we ensure every patient feels heard and informed? Let’s start that conversation.
Invasive Lobular Breast Cancer: The Rising Concern
Fred Hutch recently hosted an event for Global Lobular Breast Cancer Awareness Day, featuring powerful patient stories and insights from experts like Hannah Linden, MD, and Christopher Li, MD, PhD. Here’s the startling fact: invasive lobular carcinoma (ILC) accounts for 15% of new breast cancer cases annually, and rates are climbing. The American Cancer Society’s first-ever report on ILC reveals a steep rise in occurrences. But why isn’t this subtype getting more attention? Is it time to rethink how we prioritize cancer awareness?
HIV/AIDS Research: A Ripple Effect Across Diseases
HIV/AIDS research has saved millions of lives, but its impact doesn’t stop there. In a groundbreaking Nature Medicine article, leaders like Larry Corey, MD, explain how HIV research has spurred advancements in immunology, cancer therapy, and even neurodegenerative diseases. But here’s the bold question: with so much progress, why haven’t we achieved an effective HIV vaccine yet? The momentum is there—what’s holding us back?
Meet the Innovators Shaping Cancer Care
Dr. Heather Parsons is stepping into a new role as the program head of the Breast Oncology Program, bringing her expertise in circulating tumor DNA (ctDNA) to the forefront. Meanwhile, Petros Grivas, MD, PhD, is launching a podcast that promises to explore the latest in oncology, from clinical trials to community partnerships. And let’s not forget Steven Henikoff, PhD, whose award-winning research in gene expression is paving the way for better cancer diagnostics. But what’s truly remarkable? His work with frog eggs is helping us understand human chromosomes. Yes, frogs. Science is wild, isn’t it?
The Human Side of Research: Volunteers and Advocates
Karen Leslie and David Hopkins have spent over 30 years volunteering at Fred Hutch, turning their own cancer journeys into a legacy of service. And then there’s Jingyi Jessica Li, PhD, the new head of the Biostatistics Program, who’s using her expertise to expand the role of statistics in cancer research. These stories remind us: behind every breakthrough is a person, a passion, and a purpose.
Thought-Provoking Questions for You
- How can we better amplify patient voices in research and care?
- Are we doing enough to raise awareness for lesser-known cancers like ILC?
- What’s the next big leap in HIV/AIDS research, and what’s stopping us from getting there?
Share your thoughts in the comments—let’s keep the conversation going. Together, we can turn questions into answers and awareness into action.
